[-]Pediatrician & vaccination When I told our pediatrician that I won't have my little one having his shots before he is 1 year old, he told me I should not come back to his office. Who can recommand a pediatrician (can be homeopatic) in Manhattan who respects my decision and will treat my little one nevertheless?
17 replies [ Reply | Watch | Options ]Good luck. Many are open to spreading out the vaccines, but not avoiding vaccination all together
[ Reply | Options ]My ped once told me the name of the one ped in the city she knew who was okay with this. It is a man but not sure of his name. Maybe try the message boards at mothering.com. Someone ther might know. That said, I would not do this (and I spread them o ut a lot) What are your reasons?
[ Reply | Options ]Re: My ped once told me the name of the one ped in the city she knew who was okay with this. It is a man but not sure of his name. Maybe try the message boards at mothering.com. Someone ther might know. That said, I would not do this (and I spread th Any chance to get the name of this one ped? Is it Dr. Lawrence Palevsky? My reasons are that I don't want to stress this little body with formaldehyde and mercury (just to name two ingredients) as long as its immune system, nervous system and neurological processes are still in the developing stage.
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[-]If I wanted to get EI for my one yo DS, how do I go about doing it? Are there private places that will do it for $$? DH and I are debating whether to wait until 15 mo, but should I do it now if there is a wait for an appt? TIA!
16 replies [ Reply | Watch | Options ]It is a long process so do it ASAP. If you live in Bklyn Rivendell is a great place to be evaluated.
[ Reply | Options ]I went thru the EI process with DS when he was 18 mos. He is now 22 mos and receiving PT svcs. Process takes a long time, so make the referral ASAP. You can make the referral yourself and once case is opened, your EI cood. will contact you to set up evals. It is not fun, a lot to juggle with appts, esp since I work FT. But once evals are complete, and if your DC qualifies for svcs (must be 33% delayed in one area or 25% delayed in 2 areas) you will have an IFSP mtg during which the evals are discussed and svcs get approved. From there, your EI cood. will find providers. We referred son in May and svcs finally started end of July. Be a persistent advocate, and dont be afraid to point out flaws/delays so that you qualify for svcs. EI...
[ Reply | Options ]OK, so my one yo DS won't respond to name or point to indicate want. He babbles but won't discriminately say mama or dada (although he does consistently say mama when he's upset). Does that count as 25% or 33% delayed, do you think?
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nnp: Absolutely not. Many people go even earlier. If you notice delays in your child, the earlier you see EI, the better. OP, I would definitely call. Once you get started with EI, then you can see a developmental pediatrician for free through EI (assuming you are in NY) and I HIGHLY recommend that to get an even broader and deeper assessment. Are you in NYC? If so, don't call 311 or the statewide 800 number. Call Steppingstone at 212-973-0421 or YAI at 212-418-0323. Those are the two best EI agencies in Manhattan. Sadly there are a lot of dud agencies.
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I am not understanding. How is it that it is so long and drawn out? DS ws evaluated, and started services in less than 1 month when he was in EI. EI they are on top of fast. Now that he switched to CPSE, now it is taking forever.
[ Reply | Options ]My understanding is that they have to complete the initial evaluation within 30 days of you calling with the referral, and they have to start providing services within 45 days after that.
[ Reply | Options ]np: i believe this is true, and our evals were certainly completed within 30 days. but it's not always easy to find good therapists who have openings in their schedules when you need them. it also depends on how good your SC is at finding you people, and going to other agencies to look for therapists. i believe i spoke with 3-4 speech therapists before we found one who had openings that weren't during ds' naptime. our first OT was terrible and it took us several weeks to find a new one. so, yes, you could have A therapist start right away, but not necessarily the right therapist.
[ Reply | Options ]So far, I've had an evaluation done by Hand in Hand Dev. and they have recommended services. I haven't yet had my ?IFSP meeting. I just got assigned a new service coordinator, who is also through Hand in Hand. Now I am calling YAI to see what their availability is to provide services. Does anyone know how available their therapists are? Also, do I have to choose a service provider before the meeting? And should I also ask for a new service provider through YAI (Although I don't know of anyone in particular-- any recommendations on someone good?)
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[-]Looking for a website where I can buy gifts and have the $ donated to autism. No necessarily autism toys. Anything out there?
1 reply [ Reply | Watch | Options ]Here, try this site - you can designate where your charity percentage goes: http://www.shopforcharitynow.com
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[-]I posted before about pulling ds out of preschool. Since then we've found a school for him to go a few days a week and have started some OT etc. He's very active and does well when he's doing a lot. Is it too much to have him in 3 different sports classes (swimming, soccer etc.) plus the few hours a day at the preschool and OT?
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[-]Greeting all (attempt #2...) I need some advice! I've been a Special Ed teacher and Behavior Coach for 20 years. I LOVE what I do and seem to be pretty good at it (please tolerate my bragging and let me say I was given two awards for outstanding service) Anyway, lately I have found myself more and more upset at the entire public school system (I could rant for hours...) But had one particularly bad situation where I REALLY let a student down (she really needed to talk to me, and being overwhelmed (200 students a day, meetings, parents calling, paperwork,) I forgot all about our meeting and left for the day. Without going into details, she had a very serious issue to deal with, and trusted me enough to ask for help. I'm having a hard time ge...
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[-]Does anyone have their dc in the ASD Nest program at PS 112(NYC)? Any comments?
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Did you tour on Friday also? I was on that tour. I LOVED the principal, she is clearly one of the really good ones.
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Wondering about the TD kids in that class. R there any? How are they chosen for this clss?
[ Reply | Options ]Yes, absolutely there are. 4 kids on spectrum, 8 TD. And just as the principal told us, at first blush, could not tell which were which. That was great!
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Not sure, no one asked that question on the tour, but who wouldn't want to be in such a nice small class with two teachers!
[ Reply | Options ]Well, I have a sn child, and to be honest, ASD can have serious issues thruout the day. Not sure I'd want my TD there. Flame me, but again, I'm a SN parent and I feel that way.
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Unfortunately I'm not in Region 9, so I would be looking at the new one they're setting up in R10. I toured to see it in action. I will probably wait until hearing from private schools first, which may endanger dc's chances, but that's the choice I'm making.
[ Reply | Options ]Is your child very verbal? I keep hearing that a lot of these "classes" are for bright kids, not very verbal.
[ Reply | Options ]My child is medium verbal. Perseverates and has a terrible time processing, is much quieter in a group setting than one on one. Certainly they were frank that some of the kids have behaviors, which they work on, and which I was glad to hear because those kids need good educations as much as anyone else (sometimes more). The parents who toured were all savvy, but a mix of ethnicities/classes, which I was glad to see.
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DC does not watch videos or TV, so they are mostly recitations of daily events. Like this: "After I get on the bus I'm gonna go to school, and then we have choice time, then circle time, then we go to the playground! And then it's lunch, and I come back on the bus, and I play with [name of therapist], then I have dinner, and it's bath time." Says this several times a week, always with the exact same cadence. Or, it might be a phrase that came up in a conversation we had weeks or months ago that's the closest thing that dc has to an original phrase - "Remember when I went for a walk at the lake and we saw the ____?" Again, always in the same tone of voice as the last time.
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I would love this for my son! He's not asd. Has Sensory processing Issues. Do you think he'd qualify? Which grade level did you see? TIA
[ Reply | Options ]Unfortunately they are in fact very stringent about this. It's still worth calling the school/psychologist, who knows. We saw K, 1, and 2 (it's an early childhood ed school, goes up to 2nd grade only and the other half of the school goes up from there. They are opening a middle school soon and someday a high school, too!)
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[-]Is here a website where I can make a purchase and the money goes to autism?
1 reply [ Reply | Watch | Options ]Of course! Autism Society of America and Autism Speaks are two: http://www.autism-society.org/site/PageServer and http://www.autismspeaks.org/.
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Greetings all!
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Greetings all!
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[-]DB is 4, he has language delay (non-English speaking home, taking speech therapy, made huge progress in less than a year), very picky eater, also picky about his clothes, sometimes stacks his trains in a line before he goes to sleep, very communicative, seeks parents attention constantly (sometimes it's so hard to get him to play alone, wants someone to play with him constantly), excellent eye contact, smiles, makes friends to which he refers by name and starts conversation with, like to be read to, puzzles, games, etc. Would you be concerned further?
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[-]First post on this site, please excuse my lack of familiarity with the lingo here. Returning to New York City in a few weeks after several years away (in midwest and south). Left married and childless. Returning divorced, with a 3 year old (almost 4 year old) son who is on the spectrum. Any recommendations for a pediatrician on the Upper West Side? Or for a developmental pediatrician/pediatric neurologist etc.? Thanks in advance!
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[-]Had consult today with speech therapist for 2 year 3 month old. She said "Slight expressive delay" and to get some speech therapy. Anyone BTDT? any advice/wisdom/words of calm? thx
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That will go away in NO TIME. I had a MARKED receptive/expressive delay (3-4 languages at home) and that was gone in a year or so. :)
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Honestly, I don't really know the cause. I will tell you I was SCARED and it was the longest year. If I had to guess, I really think your daughter will catch up before 3. I got the speech therapy and was glad I did, because it made me feel that I was "doing something" but I am not certain it wouldn't have gone away on its own. And it was RECEPTIVE too- which was far more terrifying.
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Our bilingual dd had a slight delay on a monolingual scale, but on a multilingual scale, she was in the norm. If your child is bilingual, be sure that the speech therapist knows how to handle this:)
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oops, got cut off. our child is 2 and a half and doesn't talk much either. he is growing up multi-lingually and we have an appointment to see the a speech therapist. my gut feeling is that he is fine because he is obviously very smart and his receptive language in any language is strong. however, as parents we worry because compared to other kids, he is obviously behind. this is a really difficult murky area when kids differ so much in their skills.
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[-]Can a child have receptive language disorder without being autistic?
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DD was exposed to 2 languages, and could not make a sense of it. We're givign her speech therapy classes and she seems to catch up. She's very social, loving, has friends, just language delayed. Teacher pushes for evaluation, but speech therapist says nothing more is required. I can't see her beign autistic.
[ Reply | Options ]I had preemie twins exposed to several languages. Receptive/expressive delays. Pushed repeatedly for evaluations but resisted. Hired private speech therapist who said nothing more was required. Thank God every day that I listened to the ST because they caught up in one year (switched to all English, etc.)
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[-]My friend in Seattle has a new baby with colic/lots of digestion issues/allergies. She is thinking of hiring help, ideally a retired nurse, so she can pump and get sleep and just deal with a demanding baby. Any suggestions of people who do this?
7 replies [ Reply | Watch | Options ]1-800 Suck It Up. I did and so can she. This isn't a financial issue, it's a parenting issue.
[ Reply | Options ]np: that's awesome advice. And when this new mom completely loses her shit and the baby, mom, and dad all suffer, I'm sure they'll be so happy they took the "suck it up" route. Loser. The mom should hire a baby nurse if they could afford it. A coliky baby is a challenge for even the best of mothers.
[ Reply | Options ]Hey, 1-800 Troll, you are a turd. I've dealt with colic and it was crazy-making. Many studies link shaken baby syndrome to the same timeframe that infants experience colic. If someone is starting to lose it from lack of sleep, then by all means she should get assistance if she can. I doubt she'd be asking for help if she didn't need it. Even you, Troll, deserved some kindness while you were going through it, I hope you had some relief from friends or family. Judging by the tone of your reply, you didn't and that's a shame.
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[-]Does anyone have have experience with the Hallowell Center (for ADHD)? Thinking of having my 7 yo evaluated there. He had a neuropsych last year but he was "borderline" for ADHD. He's having major adjustment issues in first grade now, and I want to get some additional advice/services on board to try and support him and/or help us find an appropriate school setting. Thx.
14 replies [ Reply | Watch | Options ]Have you had his eyes checked by a developmental optomotrist Like Andrea Thau in Nyc?
[ Reply | Options ]No. Haven't thought to do this. Can eye issues look like ADHD? Right now he's having trouble focusing but also engages in a fair bit of disruptive behavior.
[ Reply | Options ]Yes, yes, yes! Vision problems can mimic ADHD. Get his eyes checked by an eye doctor who is trained in developmental optometrics. I will post a link with some info. Are you in NYC?
[ Reply | Options ]this website has a lot of info about different vision problems. http://www.visiontherapystories.org/add_adhd_drug_free.html
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We see Fran Reinstein in Andrea Thau's office. An amazing transformation in attention and focus. Interactive metronome really helped us, as well. We saw Vanessa Giardia at Createabilities OT.
[ Reply | Options ]Poster above is not OR, I am, but we also see fran reinstein in dr. Thau's office and have had results nothing short of miraculous.
[ Reply | Options ]That's great to hear. Certainly worth looking into. I'm so cynical at this point, though. Do you think they'd tell me if my ds did not have any optometric issuse? I'm reluctant to get him involved in more therapy if he doesn't truly need it. I guess we can go and see what they say. Thanks again.
[ Reply | Options ]I would hope that if there was no issue they would not have you do anything. They go through a lot of tests before they give you a diagnosis. I have to admit, I was totally feeling like it was BS, vision therapy, then we started it because during the exams I saw how my child was behaving with certain visual stimuli and i could see she had a major problem. If you have vision insurance they might pay and our health insurance picks up some of the cost of therapy. But I can say it's been priceless.
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[-]15 mo dd has no words. Ped will follow up in 2 mos. In meantime what can I do to promote language? What exercises does EI give?
7 replies [ Reply | Watch | Options ]Read to her and get some of those "Baby's First Words" books -- it might help her to see the pictures and hear you say the words simultaneously. Also, if you have an iphone, there is an app that is like a Baby's First Words book. It's called iTot cards, I believe. If nothing else, it helps them get through subway trips, long lines, restaurant meals, etc.
[ Reply | Options ]I would call EI now. It may take a while for them to find someone to do an eval and then months to get services started. No words at 15mos is meaningful. Not saying the end of the world, but I would get things started. I also would have hearning tested. Signed BTDT mom.
[ Reply | Options ]Does she understand various words? Does she babble with inflection and different sounds? If so, I wouldn't be concerned yet. My DS is 16 months and he has only a few words that he doesn't say clearly. He understands a lot and can follow basic instructions. I'm really not worried based on this.
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