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  • [-]If I wanted to get EI for my one yo DS, how do I go about doing it? Are there private places that will do it for $$? DH and I are debating whether to wait until 15 mo, but should I do it now if there is a wait for an appt? TIA!

    16 replies [ Reply | Watch | Options ]
    10.08.09, 06:25 AM [ Flag ]
    • It is a long process so do it ASAP. If you live in Bklyn Rivendell is a great place to be evaluated.

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      10.08.09, 06:31 AM [ Flag | link to this post ]
    • You can self refer for an eval. Google for early intervention NYC or call 311.

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      10.08.09, 07:18 AM [ Flag | link to this post ]
    • I went thru the EI process with DS when he was 18 mos. He is now 22 mos and receiving PT svcs. Process takes a long time, so make the referral ASAP. You can make the referral yourself and once case is opened, your EI cood. will contact you to set up evals. It is not fun, a lot to juggle with appts, esp since I work FT. But once evals are complete, and if your DC qualifies for svcs (must be 33% delayed in one area or 25% delayed in 2 areas) you will have an IFSP mtg during which the evals are discussed and svcs get approved. From there, your EI cood. will find providers. We referred son in May and svcs finally started end of July. Be a persistent advocate, and dont be afraid to point out flaws/delays so that you qualify for svcs. EI...

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      10.08.09, 09:59 AM [ Flag | link to this post ]
      • OK, so my one yo DS won't respond to name or point to indicate want. He babbles but won't discriminately say mama or dada (although he does consistently say mama when he's upset). Does that count as 25% or 33% delayed, do you think?

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        10.08.09, 10:17 AM [ Flag | link to this post ]
        • NP: Isn't one a little young to be evaluated?

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          10.08.09, 11:24 AM [ Flag | link to this post ]
          • nnp: Absolutely not. Many people go even earlier. If you notice delays in your child, the earlier you see EI, the better. OP, I would definitely call. Once you get started with EI, then you can see a developmental pediatrician for free through EI (assuming you are in NY) and I HIGHLY recommend that to get an even broader and deeper assessment. Are you in NYC? If so, don't call 311 or the statewide 800 number. Call Steppingstone at 212-973-0421 or YAI at 212-418-0323. Those are the two best EI agencies in Manhattan. Sadly there are a lot of dud agencies.

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            10.08.09, 05:35 PM [ Flag | link to this post ]
    • I am not understanding. How is it that it is so long and drawn out? DS ws evaluated, and started services in less than 1 month when he was in EI. EI they are on top of fast. Now that he switched to CPSE, now it is taking forever.

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      10.09.09, 04:12 AM [ Flag | link to this post ]
      • How old and who did the eval?

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        10.09.09, 06:57 AM [ Flag | link to this post ]
      • You probably had a much better than average case worker - once you make a request they "have" 60 or 90 days to evaluate - my experience is that they call you on the 58th day to make a next day appointment. The sooner you call, the sooner the clock starts ticking.

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        10.09.09, 07:03 AM [ Flag | link to this post ]
      • My understanding is that they have to complete the initial evaluation within 30 days of you calling with the referral, and they have to start providing services within 45 days after that.

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        11.08.09, 10:55 AM [ Flag | link to this post ]
        • np: i believe this is true, and our evals were certainly completed within 30 days. but it's not always easy to find good therapists who have openings in their schedules when you need them. it also depends on how good your SC is at finding you people, and going to other agencies to look for therapists. i believe i spoke with 3-4 speech therapists before we found one who had openings that weren't during ds' naptime. our first OT was terrible and it took us several weeks to find a new one. so, yes, you could have A therapist start right away, but not necessarily the right therapist.

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          11.08.09, 11:00 AM [ Flag | link to this post ]
          • So far, I've had an evaluation done by Hand in Hand Dev. and they have recommended services. I haven't yet had my ?IFSP meeting. I just got assigned a new service coordinator, who is also through Hand in Hand. Now I am calling YAI to see what their availability is to provide services. Does anyone know how available their therapists are? Also, do I have to choose a service provider before the meeting? And should I also ask for a new service provider through YAI (Although I don't know of anyone in particular-- any recommendations on someone good?)

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            11.19.09, 11:39 AM [ Flag | link to this post ]
  • [-]Does anyone have their dc in the ASD Nest program at PS 112(NYC)? Any comments?

    43 replies [ Reply | Watch | Options ]
    01.28.07, 03:30 PM [ Flag ]
    • What street is that at? I think DF goes there.

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      01.28.07, 03:34 PM [ Flag | link to this post ]
      • Yes, DF has ds goes there. He's actuallly ADHD, but most of the kids (I heard are Aspergers or HFA).

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        01.28.07, 03:37 PM [ Flag | link to this post ]
      • It is on 119th and Pleasant Ave. in east Harlem. Right by the FDR, kind of hard to get to, but nice large building with generous-sized classrooms.

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        01.28.07, 04:22 PM [ Flag | link to this post ]
    • why?

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      01.28.07, 03:46 PM [ Flag | link to this post ]
    • Did you tour on Friday also? I was on that tour. I LOVED the principal, she is clearly one of the really good ones.

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      01.28.07, 04:14 PM [ Flag | link to this post ]
      • So all kids r autistic? Aspie? NT as well?

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        01.28.07, 04:16 PM [ Flag | link to this post ]
        • Some of each: 1/3 on spectrum, 2/3 NT. That's K. In older grades, it's 1/4 to 3/4, total of 16 kids. Two teachers. They are *well* funded, clearly.

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          01.28.07, 04:21 PM [ Flag | link to this post ]
      • Wondering about the TD kids in that class. R there any? How are they chosen for this clss?

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        01.28.07, 04:17 PM [ Flag | link to this post ]
        • Yes, absolutely there are. 4 kids on spectrum, 8 TD. And just as the principal told us, at first blush, could not tell which were which. That was great!

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          01.28.07, 04:20 PM [ Flag | link to this post ]
          • So how do they test the asd kids? Do they have to qualify and if so how?

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            01.28.07, 04:24 PM [ Flag | link to this post ]
            • There is a series of tests dcs go through whose names/abbreviations I don't know yet. You talk to the psychologist for R9 and get your kid on the list, and then the process starts. They're also opening one in R10, up in Inwood.

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              01.28.07, 04:24 PM [ Flag | link to this post ]
          • What do parents of TD think of the class? did they request it?

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            01.28.07, 04:24 PM [ Flag | link to this post ]
            • Not sure, no one asked that question on the tour, but who wouldn't want to be in such a nice small class with two teachers!

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              01.28.07, 04:26 PM [ Flag | link to this post ]
              • Well, I have a sn child, and to be honest, ASD can have serious issues thruout the day. Not sure I'd want my TD there. Flame me, but again, I'm a SN parent and I feel that way.

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                01.28.07, 04:28 PM [ Flag | link to this post ]
                • See, the thing is - and the principal talked about this - that TD children can be JUST as time-consuming for teachers, for a host of reasons. Just because a child is neurotypical doesn't make them easy.

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                  01.28.07, 04:37 PM [ Flag | link to this post ]
              • Will you apply?

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                01.28.07, 04:33 PM [ Flag | link to this post ]
                • Unfortunately I'm not in Region 9, so I would be looking at the new one they're setting up in R10. I toured to see it in action. I will probably wait until hearing from private schools first, which may endanger dc's chances, but that's the choice I'm making.

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                  01.28.07, 04:38 PM [ Flag | link to this post ]
                  • Is your child very verbal? I keep hearing that a lot of these "classes" are for bright kids, not very verbal.

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                    01.28.07, 04:40 PM [ Flag | link to this post ]
                    • My child is medium verbal. Perseverates and has a terrible time processing, is much quieter in a group setting than one on one. Certainly they were frank that some of the kids have behaviors, which they work on, and which I was glad to hear because those kids need good educations as much as anyone else (sometimes more). The parents who toured were all savvy, but a mix of ethnicities/classes, which I was glad to see.

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                      01.28.07, 04:43 PM [ Flag | link to this post ]
                      • Sorry, please explain perseverates to me. I think my child does this too.

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                        01.28.07, 04:46 PM [ Flag | link to this post ]
                        • Gets stuck on the same phrase or idea and repeats it over and over, partially because it's too hard to think of/say novel things or have a real conversation.

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                          01.28.07, 04:47 PM [ Flag | link to this post ]
                        • Like this? Somewhere over the rainbow, ..... over and over and over. Or like, can i hve the truck? over and over?

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                          01.28.07, 04:50 PM [ Flag | link to this post ]
                        • Yes, in place of real conversation. How does dc respond when you answer "Yes, you can have the truck"?

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                          01.28.07, 04:51 PM [ Flag | link to this post ]
                        • says thanks

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                          01.28.07, 04:57 PM [ Flag | link to this post ]
                        • And stops asking? But won't stop saying it until you respond, right?

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                          01.28.07, 04:58 PM [ Flag | link to this post ]
                        • yes, persistentantly asking till someone says no or yes

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                          01.28.07, 05:00 PM [ Flag | link to this post ]
                        • Yup, we have that too. DC also "scripts" - repeats from memory a certain phrase in exactly the same order and even vocal intonation. Again, in place of true conversation.

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                          01.28.07, 05:03 PM [ Flag | link to this post ]
                        • Does your dc recite from a movie? Winnie the pooh and tigger in exact dialogue?

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                          01.28.07, 05:06 PM [ Flag | link to this post ]
                        • Phrase like what?

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                          01.28.07, 05:06 PM [ Flag | link to this post ]
                        • DC does not watch videos or TV, so they are mostly recitations of daily events. Like this: "After I get on the bus I'm gonna go to school, and then we have choice time, then circle time, then we go to the playground! And then it's lunch, and I come back on the bus, and I play with [name of therapist], then I have dinner, and it's bath time." Says this several times a week, always with the exact same cadence. Or, it might be a phrase that came up in a conversation we had weeks or months ago that's the closest thing that dc has to an original phrase - "Remember when I went for a walk at the lake and we saw the ____?" Again, always in the same tone of voice as the last time.

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                          01.28.07, 05:11 PM [ Flag | link to this post ]
                        • cAN'T help but think how adorable your dc sounds. Sounds like my niece, have to tell you, completely NT, now a teacher.

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                          01.28.07, 05:13 PM [ Flag | link to this post ]
                        • Why thank you! DC is indeed cute, which helps a lot, but also makes me worry about when childhood and cuteness end...

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                          01.28.07, 05:15 PM [ Flag | link to this post ]
                  • I would love this for my son! He's not asd. Has Sensory processing Issues. Do you think he'd qualify? Which grade level did you see? TIA

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                    01.28.07, 05:11 PM [ Flag | link to this post ]
                    • Unfortunately they are in fact very stringent about this. It's still worth calling the school/psychologist, who knows. We saw K, 1, and 2 (it's an early childhood ed school, goes up to 2nd grade only and the other half of the school goes up from there. They are opening a middle school soon and someday a high school, too!)

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                      01.28.07, 05:14 PM [ Flag | link to this post ]
      • np - I was on the tour too and I thought the principal was fantastic. Still not sure if the program is right for my dc though.

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        01.28.07, 05:46 PM [ Flag | link to this post ]
        • OR: So funny! While I was there I was looking around and wondering, "Do I 'know' any of these parents?"

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          01.28.07, 06:04 PM [ Flag | link to this post ]
          • So, is anyone seriously considering a placement in this program and is the location a real problem for anyone?

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            01.28.07, 07:41 PM [ Flag | link to this post ]
            • As I wrote above, I am not eligible for this one because I am in Region 10. I am going to wait and see what happens with privates and then decide what to do about the R10 NEST after that.

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              01.28.07, 07:57 PM [ Flag | link to this post ]
    • Is this the district 9 school up in East 100's?

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      01.28.07, 04:22 PM [ Flag | link to this post ]
  • [-]15 mo dd has no words. Ped will follow up in 2 mos. In meantime what can I do to promote language? What exercises does EI give?

    7 replies [ Reply | Watch | Options ]
    11.13.09, 09:13 AM [ Flag ]
    • just talk to her/him. My ds didn't start talking until he was 2. As long as your dc is making noises, I wouldn't worry at this point.

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      11.13.09, 09:15 AM [ Flag | link to this post ]
    • If you are home all day - narrate everything you do. Good morning, lets wake up. Ok, let's go in the kitchen and get some breakfast. Here's the bowl, here's the spoon. You will feel stupid, and don't do this infront of people you don't know, but at home talk the entire time.

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      11.13.09, 09:18 AM [ Flag | link to this post ]
    • Read to her and get some of those "Baby's First Words" books -- it might help her to see the pictures and hear you say the words simultaneously. Also, if you have an iphone, there is an app that is like a Baby's First Words book. It's called iTot cards, I believe. If nothing else, it helps them get through subway trips, long lines, restaurant meals, etc.

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      11.13.09, 09:19 AM [ Flag | link to this post ]
    • I would call EI now. It may take a while for them to find someone to do an eval and then months to get services started. No words at 15mos is meaningful. Not saying the end of the world, but I would get things started. I also would have hearning tested. Signed BTDT mom.

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      11.13.09, 09:20 AM [ Flag | link to this post ]
      • ^^^Ei sends a speech therapist to work with child. The therapy looks like play, but would be different based on nature of speech delay.

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        11.13.09, 09:26 AM [ Flag | link to this post ]
    • Please call EI now, do NOT wait. Most peds are really ill informed about developmental stuff. If your dd is fine, EI will tell you so; but 15mo is a great time to call. BTDT.

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      11.13.09, 02:49 PM [ Flag | link to this post ]
    • Does she understand various words? Does she babble with inflection and different sounds? If so, I wouldn't be concerned yet. My DS is 16 months and he has only a few words that he doesn't say clearly. He understands a lot and can follow basic instructions. I'm really not worried based on this.

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      11.13.09, 03:10 PM [ Flag | link to this post ]
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